Huntington's Disease (HD) Fact Sheet
(HD Support Information)

Huntington's A genetically inherited, neurologic disease with midlife onset of symptoms that progress over a 15-20 year period.
Three Disorders Huntington's is thought of as three disorders:
  • A movement disorder with involuntary movements, postural changes, and difficulty with swallowing, balance, and speech.
  • A cognitive disorder contributes to difficulty with impulse control, impaired judgment, and organizing thoughts and action.
  • An emotional disorder that presents ongoing challenges with depression.
Progressive Huntington's often starts insidiously with restlessness, changes in temperament, depression, and involuntary movements of the fingers or face. In its most advanced stages, there is great difficulty in speaking clearly, walking, and eating.
Midlife Onset Most individuals with HD have the onset of symptoms occur in the primes of their lives, i.e., 30s, 40s, or 50s. There is a juvenile form of Huntington's that affects about one person in ten cases.
Genetics Each and every child of a parent with Huntington's has a 50/50 chance of inheriting the gene for HD. It does NOT skip generations. Men and women have the same chance for inheriting the gene.
Prevalence It is estimated that about 25,000 to 30,000 people in the United States have HD. It affects all races.
Family Disease HD is truly a disease of families. Most people with HD have watched one of their parents live through the disease. Many have cared for an afflicted parent in their lifetimes. This person may have brothers or sisters with HD too. Individuals with HD may be concerned that they have passed the disease on to their own children as well.

 

© 2007 Center for Neurobehavioral Health Ltd.

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